We introduced you to little Saba last year. Saba was diagnosed with JET (junctional ectopic tachycardia) when her heart failed at just 11 months of age. With the help and expertise of the staff at the Mater’s Paediatric Intensive Care Unit (PICU), she miraculously survived a series of life threatening events.
It has now been two years since Saba’s sudden fight for life began, and her mum Erica provides us with an update.
‘Saba was discharged from The Mater Children’s Hospital shortly after her first birthday and amazingly hasn’t experienced an episode of JET since. She is currently medicated twice daily and strongly insists that she be the one to administer her medications.
Saba is approaching her third birthday and lives life as a normal child would. She now attends a local daycare centre as well as swimming lessons. Her beautifully independent and outgoing nature is inspiring and reminds us not to bubble wrap her.
Saba’s future is still unknown and we are faced with the possibility of her condition returning as her medications are gradually reduced. The cessation of another medication is just around the corner so all eyes will be on her at this scary time.
The reveal device in Saba’s chest enables her to be monitored away from the hospital under the care of her electrocardiologist, Dr Jim Morwood at the Mater Children’s Cardiac Clinic.
Saba could potentially face further heart surgery if her JET syndrome does return. There is a possibility that the JET syndrome is no longer present and was initiated by a virus but the answer to this question remains unknown until all medications are withdrawn.
There is not a day that goes by that we don’t think or wonder what the future holds for Saba. But at the same time we are reminded daily of how lucky we are to have her here and what an amazing miracle she is.
We still remain deeply affected by Saba’s journey and are eternally grateful to The Mater Children’s Intensive Care Unit, 8 east cardiac ward and The Preston James Fund for saving Saba’s life.’